Julie Gilbert
Staff Scientist
julie.gilbert@cancercare.on.ca
Research Interests
- Diagnostic assessment
- Patient navigation
- Privacy
- Medico-legal issues
- Ethics
Current Appointments
- Staff Scientist and Manager, Planning and Regional Programs, Cancer Care Ontario
Education & Credentials
- PhD, Health Policy, Management and Evaluation, University of Toronto
- MSc, Epidemiology, University of Toronto
Skills & Experience
- Implementation science, needs assessment and program evaluation using frameworks such as developmental, utilization and realist evaluation
- Program evaluation by applying research methods to assessing the impact of initiatives from various perspectives
- Knowledge Transfer and Exchanges, including Knowledge-to-Action Theory and the role of knowledge translation in implementation science
- Survey design development and execution, and the management and analysis of survey data
- Quantitative and qualitative research methods (strength in quantitative)
- Healthcare improvement, including Quality Improvement methodologies
- Data management, including data quality, validation, documentation and linkage
- Cancer databases and their uses (e.g. Activity Level Reporting, Symptom Management Database, Diagnostic Data Upload Tool, Wait Time Information System, Ambulatory Oncology Patient Satisfaction Survey)
- Patient engagement and patient experience
- Measurement of patient experience (e.g., domains, complexities)
- Research ethics and their role in research and evaluation
- Ontario cancer system, regional cancer programs and centres, and community elements of cancer care
- Diagnostic phase of cancer care, including screening and diagnostic entry into the system
- Chronic disease and cancer epidemiology, including risk, incidence, prevalence, mortality and trends
Selected Publications
| Year | Title | Authors | Citation | Category |
|---|---|---|---|---|
| 2016 | Family physician access to and wait times for cancer diagnostic investigations: regional differences among 3 provinces | Barisic A, Kish M, Gilbert J, Mittmann N, Moineddin R, Sisler J, Vedsted P, Grunfeld E. | Can Fam Physician. 2016 Oct;62(10):e599-e607. PubMed PMID: 27737995; PubMed Central PMCID: PMC5063786. | Cancer |
| 2016 | Phase II trial of dasatinib for recurrent or metastatic c-KIT expressing adenoid cystic carcinoma and for nonadenoid cystic malignant salivary tumors | Wong SJ, Karrison T, Hayes DN, Kies MS, Cullen KJ, Tanvetyanon T, Argiris A, Takebe N, Lim D, Saba NF, Worden FP, Gilbert J, Lenz HJ, Razak AR, Roberts JD, Vokes EE, Cohen EE. | Ann Oncol. 2016 Feb;27(2):318-23. doi: 10.1093/annonc/mdv537. Epub 2015 Nov 23. PubMed PMID: 26598548; PubMed Central PMCID: PMC4722891. | Cancer |
| 2016 | Health Services Data: The Ontario Cancer Registry (a unique, linked, and automated population-based registry) [book chapter] | Prodhan S, King MJ, De P and Gilbert J. | In: A. Levy, S. Goring (eds.), Data and Measures in Health Services Research, Health Services Research. Her Majesty the Queen in Right of Canada, 2016. DOI 10.1007/978-1-4899-7673-4_18-1 | Cancer |
| 2015 | A systematic review of randomized controlled trials for management of persistent post-treatment fatigue in thyroid cancer survivors | To J, Goldberg AS, Jones J, Zhang J, Lowe J, Ezzat S, Gilbert J, Zahedi A, Segal P, Sawka AM. | Thyroid. 2015 Feb;25(2):198-210. doi: 10.1089/thy.2014.0418. Epub 2014 Dec 10. PubMed PMID: 25382050. | Cancer |
| 2015 | Effect of specialized diagnostic assessment units on the time to diagnosis in screen-detected breast cancer patients | Jiang L, Gilbert J, Langley H, Moineddin R, Groome PA. | Br J Cancer. 2015 May 26;112(11):1744-50. doi: 10.1038/bjc.2015.147. Epub 2015 May 5. PubMed PMID: 25942395. | Cancer |
| 2015 | The patient patient: the importance of knowing your navigator | Wheeler S, Gilbert J, Kaan M, Klonikowski E, Holloway C. | Patient Experience Journal. 2015 Nov; 2(2): 12. (not in PubMed) | Cancer |
| 2014 | Convergence of genes and cellular pathways dysregulated in autism spectrum disorders | Pinto D, Delaby E, Merico D, Barbosa M, Merikangas A, Klei L, Thiruvahindrapuram B, Xu X, Ziman R, Wang Z, Vorstman JA, Thompson A, Regan R, Pilorge M, Pellecchia G, Pagnamenta AT, Oliveira B, Marshall CR, Magalhaes TR, Lowe JK, Howe JL, Griswold AJ, Gilbert J, Duketis E, Dombroski BA, De Jonge MV, Cuccaro M, Crawford EL, Correia CT, Conroy J, Conceição IC, Chiocchetti AG, Casey JP, Cai G, Cabrol C, Bolshakova N, Bacchelli E, Anney R, Gallinger S, Cotterchio M, Casey G, Zwaigenbaum L, Wittemeyer K, Wing K, Wallace S, van Engeland H, Tryfon A, Thomson S, Soorya L, Rogé B, Roberts W, Poustka F, Mouga S, Minshew N, McInnes LA, McGrew SG, Lord C, Leboyer M, Le Couteur AS, Kolevzon A, Jiménez González P, Jacob S, Holt R, Guter S, Green J, Green A, Gillberg C, Fernandez BA, Duque F, Delorme R, Dawson G, Chaste P, Café C, Brennan S, Bourgeron T, Bolton PF, Bölte S, Bernier R, Baird G, Bailey AJ, Anagnostou E, Almeida J, Wijsman EM, Vieland VJ, Vicente AM, Schellenberg GD, Pericak-Vance M, Paterson AD, Parr JR, Ol eira G, Nurnberger JI, Monaco AP, Maestrini E, Klauck SM, Hakonarson H, Haines JL, Geschwind DH, Freitag CM, Folstein SE, Ennis S, Coon H, Battaglia A, Szatmari P, Sutcliffe JS, Hallmayer J, Gill M, Cook EH, Buxbaum JD, Devlin B, Gallagher L, Betancur C, Scherer SW | Am J Hum Genet. 2014 May 1;94(5):677-94. doi: 10.1016/j.ajhg.2014.03.018. PubMed PMID: 24768552; PubMed Central PMCID: PMC4067558. | Other |
| 2014 | How can diagnostic assessment programs be implemented to enhance inter-professional collaborative care for cancer? | Gagliardi AR, Stuart-McEwan T, Gilbert J, Wright FC, Hoch J, Brouwers MC, Dobrow MJ, Waddell TK, McCready DR. | Implement Sci. 2014 Jan 3;9:4. doi: 10.1186/1748-5908-9-4. PubMed PMID: 24383742; PubMed Central PMCID: PMC3884012. | Cancer |
| 2014 | Persistent posttreatment fatigue in thyroid cancer survivors: a scoping review | Sawka AM, Naeem A, Jones J, Lowe J, Segal P, Goguen J, Gilbert J, Zahedi A, Kelly C, Ezzat S. | Endocrinol Metab Clin North Am. 2014 Jun;43(2):475-94. doi: 10.1016/j.ecl.2014.02.007. Review. PubMed PMID: 24891173. | Cancer |
| 2013 | Creation of a diagnostic wait times measurement framework based on evidence and consensus | Gilbert JE, Dobrow MJ, Kaan M, Dobranowski J, Srigley JR, Jusko Friedman A, Irish JC. | J Oncol Pract. 2014 Sep;10(5):e373-9. doi: 10.1200/JOP.2013.001320. Epub 2014 Jul 29. PubMed PMID: 25074879. | Cancer |
| 2012 | Quality improvement in cancer symptom assessment and control: the Provincial Palliative Care Integration Project (PPCIP) | Gilbert JE, Howell D, King S, Sawka C, Hughes E, Angus H, Dudgeon D. | J Pain Symptom Manage. 2012 Apr;43(4):663-78. doi: 10.1016/j.jpainsymman.2011.04.028. PubMed PMID: 22464352. | Cancer |
| 2012 | Understanding the needs of lung cancer patients during the pre-diagnosis phase | Wiljer D, Walton T, Gilbert J, Boucher A, Ellis PM, Schiff S, Sellick SM, Simunovic M, Bezjak A, Urowitz S. | J Cancer Educ. 2012 Jun;27(3):494-500. doi: 10.1007/s13187-012-0345-0. PubMed PMID: 22532298. | Cancer |
| 2012 | Phase II efficacy and pharmacogenomic study of selumetinib (AZD6244; ARRY-142886) in iodine-131 refractory papillary thyroid carcinoma with or without follicular elements | Hayes DN, Lucas AS, Tanvetyanon T, Krzyzanowska MK, Chung CH, Murphy BA, Gilbert J, Mehra R, Moore DT, Sheikh A, Hoskins J, Hayward MC, Zhao N, O'Connor W, Weck KE, Cohen RB, Cohen EE. | Clin Cancer Res. 2012 Apr 1;18(7):2056-65. doi: 10.1158/1078-0432.CCR-11-0563. Epub 2012 Jan 12. PubMed PMID: 22241789. | Cancer |
| 2011 | Nurses as patient navigators in cancer diagnosis: review, consultation and model design | Gilbert JE, Green E, Lankshear S, Hughes E, Burkoski V, Sawka C. | Eur J Cancer Care (Engl). 2011 Mar;20(2):228-36. doi: 10.1111/j.1365-2354.2010.01231.x. Epub 2010 Oct 18. Review. PubMed PMID: 20955374. | Cancer |
| 2011 | Cancer Care Ontario's experience with implementation of routine physical and psychological symptom distress screening | Dudgeon D, King S, Howell D, Green E, Gilbert J, Hughes E, Lalonde B, Angus H, Sawka C. | Psychooncology. 2012 Apr;21(4):357-64. doi: 10.1002/pon.1918. Epub 2011 Feb 8. PubMed PMID: 21308858. | Cancer |